Anonymous asked: May I ask how you found out that you have Ehlers-Danlos Syndrome? I think I might have it and I just want to know. You don't have to answer if it's an invasion of privacy.
while me and my mum have known for a long time there is something weird about this kid who has rubber limbs that get hurt a lot, it was my dad (former GP, now a specialist in old age psychiatry) who thought there was something that a rheumatologist might be able to do for me, so while none of us knew the actual problem he knew the right kind of person to send me to- so yeah, find a rheumatologist! they know stuff :Tb