Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cell in the body is floppy, so fingers are definitely an issue for many of us. I can almost guarantee that for the majority of us, writing is not only slow and painful but nearly impossible at times. FIne motor skills? What even are those? An EDSer surely doesn’t have any of those. Even typing which is far easier than writing, is painful and daunting at times. But last year I joined the population of shiny zebras by getting fitted for a set of Silver Rings Splints and they are beyond magical.
For those of you who have not heard of The Silver Ring Splint Company, they are a company that custom makes finger splints that look like elegant pieces of jewelry. Don’t believe me? Well I can’t even tell you how many compliments I’ve received for them. Nobody even suspects that they might possibly be medical. But more importantly, they work amazing! I still have hand pain and finger dislocations when performing fine motor skills and writing is definitely not something I look forward to but I have saved myself thousands of painful dislocations, I can open doors easier, type faster, write longer and hold objects in my hands without looking like an alien from a sic-fi movie. With the rings on my fingers actually look like fingers rather than tentacles!
The company is also family owned and the people are so sweet and helpful!
If you are having trouble with hand pain, clumsiness and dislocations please check out this amazing company!
I’m literally crying right now. I will be able to use my hands!!! As it stands I can’t do dishes, hold things, write, hold books, type, without pain or dislocation. Oh my gosh. This is a miracle.
@peaceypanic
those are gorgeous and that is amazing how well they’re working! signal boost!
I love these things. I use one for my thumb because due to arthritis I have very little strength/support in the joint and therefore often can’t do anything. My splint makes it possible for me to do my job, do the shit i need to do and not have as bad of pain.
these are so cool
omg the first ehlers danlos post I’ve seen, this makes me happy!
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Anonymous asked: So... I have something to ask. I'm aspiring to be an artist once I can attend art college, but for now I'm still quite young. Lately, I've been doubtful of my current style, as I was told just the other day that "all (my) characters look the same". I'd like for my style to be a tad more realistic, but... I can't seem to make anything work that way. I know I have time to keep learning and developing, but I'm impatient; I can't help it. What should I do?
Ooooh do I feel you there- unfortunately you’re going to be like that, forever. Yup. Artists, no matter what their age, nearly always feel this way- I certainly do! Right now, as it happens. The funny thing is the when you feel that you’re really in a rut and not improving or going too slowly etc. that is usually the time that you are learning the most. It doesn’t show because your brain is always 5 years ahead of your hands, but the connections are being made, and that sense of self analysis (barring being too overly self critical) is vital to improving.
I’m sorry I can’t help get rid of that impatient feeling, but you really do just have to be… patient! And not with ‘waiting until you’re better at stuff’ I mean just, patient. With yourself and with others and with the world and how you fit into it, or not! Patience is not about doing nothing, it is active; it is about diligence and coping with frustration by observing. So, observe what is frustrating you: if you have a real weakness, like say hands or feet or backgrounds, make it your focus for a while. Just do studies of real hands and feet, or colour studies of nice landscapes, or try imitating a style that you like and then apply it to something new. Give yourself little challenges in the form of games and art lessons, and don’t feel obliged to post the results; the majority of the ‘learning’ work I do is never seen by other people because in itself it is not especially valuable, it is the process of doing it that is.
If you want to push your style in particular, studying the real thing super helps with that. Don’t worry about it looking ‘realistic’, just drive yourself to understand what you are looking at. Be intimate- try to know what you are drawing inside out, because when you are at that level of understanding then you can start pulling it to pieces and exaggerating different parts of it in an effective way (which is basically how you stylize). Try breaking yourself out of your comfort zone, too; try using different media than usual, or even draw with your none dominant hand for a while! Allow yourself to play and get things wrong, because both of those things are how you learn to get better.
clamperls asked: hey dude!! if someone logs out of their account, theyre able to send anon messages, which i assume is how that person sent a message even though they were blocked. it is a flaw for sure but i dont think theres any way around it :c
ohhh, go figure! thanks for the info buddy, did not know that
Okay, so there are so many things about this which I feel like should not have to explain but what the hell;
1) If I have blocked you there really shouldn’t be any way for you to have sent me this message even if it’s on anonymous (if it is possible then wtf is the point of having a block option), so there might just be something whacky going on with your account? Idk.
2) You are anonymous, I have no idea who you are so there is no way for me to know why I blocked you. If I blocked you.
3) I really do not block people often and never without a good reason.
4) I’m pretty sure the last time I did block anyone was a few months back and I can’t remember what the username was or the actual offence because like I have time to catelogue and memorize that shit. In fact the worst messages that have led to me blocking a user have been sent as anonymous messages, which means I never know who sent them at all.
5) Unless you’ve been somehow blocked by accident (??? is that possible), or someone else used your account to send me upsetting material then I can only suppose you did something to make me block you, in which event I on no account regret having done so or feel obliged to give an explanation for it.
6) If any person blocks you I’m afraid you have to suppose that they did so for a reason and will not want to be harrassed for it any further. Asking about it will probably cause them a huge amount of anxiety, and even if you feel you didn’t give them a reason to block you there is no absolute way of being sure of that. We can’t understand what makes everyone tick and what would make certain individuals feel compelled to block someone. In this case it is probably best to simply move on and leave them alone.
7) But seriously if I have blocked you how did you ask this??? (゜-゜)
when youre tired as hell but your brain keeps flooding you with inspiration to draw but youre too tired to hold anything but you cant fucking sleep because your brain keeps flooding you with inspiration to draw but yo
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I NEVER MAKE THESE POSTS, EVER, BUT THIS IS REALLY IMPORTANT TO ME
DAVID FUCKING CAMERON IS DECIDING TO MAKE CUTS ON CAMHS, WHO HELP YOUNG PEOPLE THROUGH THEIR MENTAL ILLNESSES, WHICH PUTS THEM AT RISK ON SHUTTING DOWN
NOW, THESE PEOPLE HAVE HELPED ME. A LOT. THEY’VE HELPED ME FIND THINGS ABOUT MYSELF I NEVER THOUGHT AND WITHOUT THEM HELPING WITH MY ANXIETY AND DEPRESSION, I WOULD BE DEAD. AND SO MANY OTHER YOUNG PEOPLE WILL BE IF THEY GET CLOSED OFF.
FOR THE LOVE OF EVERYTHING PLEASE SIGN THE PETITION, DAVID CAMERON SHOULD BE HELPING CAMHS, NOT FUCKING MAKING CUTS
CAMHS IS STRUGGLING BADLY RIGHT NOW. How do I know? I’m only just getting into their care/treatment.
When I went and asked for an appointment it took about 2-3 weeks for them to contact me. After that it took about 3 months to have the appointment itself. It’s because every single appointment, every time slot, is filled in. They even say that if you don’t think you can make it to CANCEL asap because they need to give these appointments out to as many as they can. Now they have to have appointments for those they can help every few weeks rather than what some young people need, which is every few days.
THEY NEED MORE MONEY, NOT CUTS. They have been cut so much in the past few years I fear another cut in money for them will lead to CAMHS being useless for young people and possibly shut down.
PLEASE SIGN IT PLEASE
in case you hadn’t got the memo GREAT GOOGLY MOOGLY THINGS ARE ALL GOING TO SHIT please help us prevent this conservative git from being a complete git and buggering up even more than he already has
